15 Best Congenital Disorders Podcasts

1. If We Knew Then - Down Syndrome Podcast

Play Watch Video
Website Apple Spotify YouTube Episodes
We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.MORE Hosts Stephen Saux, Lori Saux
Producer/Network Stephen and Lori Saux
Email ****@gmail.com
Estimated listeners
Apple Rating 5/5Apple Reviews 115Facebook 6.6KTwitter 1.4K Avg Length 63 min Format Long form Since Apr 2020 Get Email Contact Get access to full database of 2.7M podcastsCreate podcast lists, export in spreadsheet or CSV file with email contacts and start your podcast outreach in minutes.Sign Up for Free with Email Continue with Google

2. The LowDOWN: A Down Syndrome Podcast

Play Watch Video
Website Apple Spotify YouTube Episodes
The LowDOWN: A Down Syndrome Podcast brings a professional perspective on issues facing individuals with Down syndrome and their loved ones. Hosts Marla Folden and Hina Mahmood of the Down Syndrome Resource Foundation welcome North America's leading Down syndrome experts, parents and self-advocates to cover topics from across the lifespan including health, physical and intellectual development, advocacy, employment and much more.MORE Hosts Hina Mahmood, Marla Folden
Producer/Network Down Syndrome Resource Foundation
Email ****@dsrf.org
Estimated listeners
Apple Rating 4.7/5Apple Reviews 62Facebook 14.4KTwitter 3.4KInstagram 2.8K Avg Length 54 min Format Long form Since Apr 2020 Get Email Contact

3. Down Syndrome Center Podcast

Play Watch Video
Website Apple Spotify YouTube Episodes
This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.MORE Host Kishore Vellody, MD
Email ****@chp.edu
Estimated listeners
Apple Rating 4.8/5Apple Reviews 77Facebook 94.9KTwitter 32.8KInstagram 35K Avg Length 26 min Format Medium form Since Feb 2013 Get Email Contact

4. TALK Down Syndrome

Play
Website Apple Spotify Episodes
TALK Down Syndrome is a podcast created to show the world how Down Syndrome is truly amazing. My goal is to inspire and support through YOUR life stories! Each episode is a unique interview that provides real life experiences about our loved ones, shared by you. Together we can create a new definition of Down syndrome! We are here to TALK (Teach, Advocate, Listen, and Kindness)MORE Host Chantele Holm
Producer/Network Chantele
Email ****@gmail.com
Estimated listeners
Apple Rating 5/5Apple Reviews 13 Avg Length 54 min Format Long form Since May 2020 Get Email Contact

5. Living With Cystic Fibrosis

Play Watch Video
Website Apple Spotify YouTube Episodes
Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
Host Laura Bonnell
Email ****@cbsradio.com
Estimated listeners
Apple Rating 4.7/5Apple Reviews 22Facebook 455Twitter 1.7KInstagram 672 Avg Length 44 min Format Long form Since Feb 2019 Get Email Contact

6. Stronger Every Day

Website Apple Spotify
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autismMORE Host Bo Bigelow
Email ****@gmail.com
Estimated listeners
Apple Rating 5/5Apple Reviews 85Facebook 220Twitter 252 Since Jan 2015 Get Email Contact

7. The CFRI CF Community Voices Podcast

Play
Website Episodes
CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Email ****@cfri.org
Estimated listeners
Facebook 13.8KTwitter 2.1KInstagram 4 Avg Length 30 min Format Medium form Since May 2018 Get Email Contact

8. The Lucky Few

Play Watch Video
Apple Spotify YouTube Episodes
Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.MORE Hosts Heather Avis, Micha Boyett, Mercedes Lara
Producer/Network The Lucky Few Podcast
Email ****@theluckyfew.com
Estimated listeners
Apple Rating 4.9/5Apple Reviews 381 Avg Length 46 min Format Long form Get Email Contact

9. The Rare Life

Play
Website Apple Spotify YouTube Episodes
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don't shy away from the strong and mixed emotions that often accompany medically-complex parenting.Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.MORE Host Madeline Cheney
Email ****@mightiestmamas.org
Estimated listeners
Apple Rating 5/5Apple Reviews 178Facebook 1.8KInstagram 23.1K Avg Length 41 min Format Long form Get Email Contact

10. A Mama's Xtra Love

Play
Website Apple Spotify Episodes
Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don't know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it's genetic prevalence in individuals lives.MORE Host Nicole Smith
Producer/Network Talk Fragile X
Email ****@fragilex.org
Estimated listeners
Apple Rating 5/5Apple Reviews 16Facebook 18.4KTwitter 2.7KInstagram 806 Avg Length 27 min Format Medium form Since May 2020 Get Email Contact

11. Good Things in Life podcast

Play
Website Spotify Episodes
Join Genia in discussion with other parents, thought leaders and visionaries about helping young children with intellectual disabilities get the good things in life. Want your child to go to school, make friends, play on teams and have a bright future? Join the conversation. Good things in life is for families with vision about what is possible and how to achieve it...MORE Host Genia Stephen
Email ****@goodthingsinlife.org
Estimated listeners
Apple Rating 4.8/5Apple Reviews 30Facebook 1.9KTwitter 195Instagram 327 Avg Length 58 min Format Long form Since Oct 2018 Get Email Contact

12. The Shifting Perspectives Podcast

Play
Website Apple Spotify YouTube Episodes
Launched in Down's Syndrome Awareness Week 2019, the Shifting Perspectives Podcast is brought to you by the Down's Syndrome Association.In our podcast, we'll tell the stories of people who have Down's syndrome as well as of their families and carers, raising a smile, providing insights and challenging commonly held attitudes and prejudices.We are thrilled to be working with Richard Bailey, curator and mastermind behind the Shifting Perspectives photography project, as our host.Where Shifting Perspectives beganWhen his daughter, Billie-Jo, was born at the start of the noughties he knew very l..MORE Producer/Network The Down's Syndrome Association
Email ****@downs-syndrome.org.uk
Estimated listeners
Apple Rating 5/5Apple Reviews 22Facebook 241.2KTwitter 22K Avg Length 21 min Format Medium form Since Mar 2019 Get Email Contact

13. Down Right Designed

Play
Website Apple Spotify Episodes
Podcast highlighting the life of Anna Sasser, a young adult with Down syndrome. She participates in discussions about her adventures, challenges, hopes, dreams, and life in general.
Host Anna Sasser
Email ****@outlook.com
Estimated listeners
Apple Rating 5/5Apple Reviews 13Facebook 2.9K Avg Length 33 min Format Medium form Since Feb 2020 Get Email Contact

14. Heart2Hearts

Play
Website Apple Spotify Episodes
Each episode will be a discussion with a person who has a Congenital Heart Defect (CHD) and about their journey with a CHD and how they go through life.Linktree: https://linktr.ee/Heart2heartspodcastMusic used by permission by Leon Dietsch https://soundcloud.com/leon-laser-pew-pewMORE Producer/Network Stewart Laing
Email ****@heart2hearts.uk
Estimated listeners
Apple Rating 4/5Apple Reviews 9Instagram 964 Avg Length 31 min Format Medium form Since Feb 2021 Get Email Contact

15. Heart to Heart with Anna

Play
Website Apple Spotify Episodes
Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard...MORE Host Anna Jaworski
Producer/Network HUG Podcast Network
Email ****@hearttoheartwithanna.com
Estimated listeners
Apple Rating 4.4/5Apple Reviews 23Facebook 2.3KTwitter 826 Avg Length 42 min Format Long form Since Sep 2014 Get Email Contact