20 Best Congenital Disorders Podcasts

1. If We Knew Then - Down Syndrome Podcast

Follow Play Watch Video
Website Apple Spotify
We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.MORE Hosts Stephen Saux, Lori Saux
Producer/Network Stephen and Lori Saux
Email ****@gmail.com
Apple Rating 5/5Facebook 5KTwitter 1.4K Avg Length 52 min Since Apr 2020 Get Email Contact Get Influential Podcasters ContactsGet access to 100k active Podcasters, Influencers in 1500 niche categories.Get targeted media contact list in your niche at your fingertips so you can focus on running your campaign.Email us the categories of Podcasters you want to reach out for your marketing campaign at anuj@feedspot.com Copy email. We'll share active Podcasters list with verified email contacts in an Excel or CSV format.Email us

2. Stronger Every Day

Follow Website Apple Spotify
I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called Hao-Fountain Syndrome, or USP7. She's different. And now, so is everything else. #USP7 #HaoFountainSyndrome #autismMORE Host Bo Bigelow
Producer/Network Bo Bigelow
Email ****@gmail.com
Apple Rating 5/5Facebook 221Twitter 252 Since Jan 2015 Get Email Contact

3. Living With Cystic Fibrosis

Follow Play
Website Apple Spotify
Living with cystic fibrosis: the challenges and triumphs along the way. Live-Breathe-Inspire
Host Laura Bonnell
Producer/Network Laura Bonnell
Email ****@cbsradio.com
Apple Rating 4.7/5Facebook 455Twitter 1.7K Avg Length 40 min Since Feb 2019 Get Email Contact

4. Down Syndrome Center Podcast

Follow Play
Website Apple Spotify
This podcast contains information for caregivers and providers regarding Down syndrome. Hosted by Dr. Kishore Vellody, Medical Director of the Down Syndrome Center of Western Pennsylvania and former President of the National Down Syndrome Congress.MORE Host Kishore Vellody, MD
Producer/Network Kishore Vellody, MD
Email ****@chp.edu
Apple Rating 4.8/5Facebook 90.7KTwitter 32.8KInstagram 32.2K Avg Length 22 min Since Feb 2013 Get Email Contact

5. The LowDOWN: A Down Syndrome Podcast

Follow Play Watch Video
Website Apple Spotify
The LowDOWN: A Down Syndrome Podcast brings a professional perspective on issues facing individuals with Down syndrome and their loved ones. Hosts Marla Folden and Hina Mahmood of the Down Syndrome Resource Foundation welcome North America's leading Down syndrome experts, parents and self-advocates to cover topics from across the lifespan including health, physical and intellectual development, advocacy, employment and much more.MORE Hosts Hina Mahmood, Marla Folden
Producer/Network Down Syndrome Resource Foundation
Email ****@dsrf.org
Apple Rating 4.7/5Facebook 13.9KTwitter 3.4KInstagram 2.6K Avg Length 47 min Since Apr 2020 Get Email Contact

6. Heart to Heart with Anna

Follow Play
Website Apple Spotify
Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard...MORE Host Anna Jaworski
Producer/Network HUG Podcast Network
Email ****@hearttoheartwithanna.com
Apple Rating 4.4/5Facebook 2.3KTwitter 846 Avg Length 42 min Since Sep 2014 Get Email Contact

7. TALK Down Syndrome

Follow Play
Website Apple Spotify
TALK Down Syndrome is a podcast created to show the world how Down Syndrome is truly amazing. My goal is to inspire and support through YOUR life stories! Each episode is a unique interview that provides real life experiences about our loved ones, shared by you. Together we can create a new definition of Down syndrome! We are here to TALK (Teach, Advocate, Listen, and Kindness)MORE Host Chantele Holm
Producer/Network Chantele
Email ****@gmail.com
Apple Rating 5/5 Avg Length 55 min Since May 2020 Get Email Contact

8. Talk Fragile X

Follow Play
Website Apple Spotify
Talk Fragile X Podcast exists to provide a platform for families and Fragile X experts to share their knowledge, resources, and experiences, all in the hopes of creating more awareness, advocacy, and support of Fragile X Syndrome! Even if you don't know what Fragile X Syndrome is, this Podcast is for you! I want everyone to know what Fragile X is and understand it's genetic prevalence in individuals lives.MORE Producer/Network Talk Fragile X
Email ****@fragilex.org
Apple Rating 5/5Facebook 17KTwitter 2.7KInstagram 3.2K Avg Length 30 min Since May 2020 Get Email Contact

9. The CFRI CF Community Voices Podcast

Follow Play
Website
CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Email ****@CFRI.org
Facebook 11.4KTwitter 2.1K Avg Length 35 min Since May 2018 Get Email Contact

10. Down Right Designed

Follow Play
Website Apple Spotify
Podcast highlighting the life of Anna Sasser, a young adult with Down syndrome. She participates in discussions about her adventures, challenges, hopes, dreams, and life in general.
Host Anna Sasser
Producer/Network Anna Sasser (and her Dad)
Email ****@outlook.com
Apple Rating 5/5Facebook 2.8K Avg Length 31 min Since Feb 2020 Get Email Contact

11. The Rare Life

Follow Play
Website Apple Spotify
This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don't shy away from the strong and mixed emotions that often accompany medically-complex parenting.Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface for a family living with disabilities.MORE Host Madeline Cheney
Producer/Network Madeline Cheney
Email ****@mightiestmamas.org
Apple Rating 5/5Facebook 1.8KInstagram 20.9K Avg Length 46 min Get Email Contact

12. The Lucky Few

Follow Play
Website Apple Spotify
Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara.MORE Hosts Heather Avis, Micha Boyett, Mercedes Lara
Producer/Network The Lucky Few Podcast
Email ****@theluckyfew.com
Apple Rating 4.9/5 Avg Length 48 min Get Email Contact

13. Disorderly Blondes Autism PODCAST

Follow Play
Website Apple Spotify
South Florida moms, Brenda and Kristi, candidly discuss MOTHERHOOD and AUTISM while balancing heels, cocktails, and meltdowns. They share the challenges and triumphs that define the parenting journey of their own special needs sons (autism spectrum disorder CHRNA7 genetic duplication). Together, they provide community support and a lifeline to parents of newly diagnosed children, teens, and adults. Guests bring essential professional information to educate and empower families. The blondes keep it light by coloring outside their tan lines and flipping off the PC police...MORE Hosts Brenda Popritkin, Kristi Vannatta
Producer/Network Disorderly Blondes
Email ****@gmail.com
Apple Rating 4.9/5Facebook 847Twitter 174 Avg Length 46 min Get Email Contact

14. Good Things in Life podcast

Follow Play
Website Apple Spotify
Join Genia in discussion with other parents, thought leaders and visionaries about helping young children with intellectual disabilities get the good things in life. Want your child to go to school, make friends, play on teams and have a bright future? Join the conversation. Good things in life is for families with vision about what is possible and how to achieve it...MORE Host Genia Stephen
Producer/Network Genia Stephen
Email ****@goodthingsinlife.org
Apple Rating 4.8/5Facebook 1.9KTwitter 195 Avg Length 58 min Since Oct 2018 Get Email Contact

15. The Shifting Perspectives Podcast

Follow Play
Website Apple Spotify
Launched in Down's Syndrome Awareness Week 2019, the Shifting Perspectives Podcast is brought to you by the Down's Syndrome Association.In our podcast, we'll tell the stories of people who have Down's syndrome as well as of their families and carers, raising a smile, providing insights and challenging commonly held attitudes and prejudices.We are thrilled to be working with Richard Bailey, curator and mastermind behind the Shifting Perspectives photography project, as our host...MORE Producer/Network The Down's Syndrome Association
Email ****@downs-syndrome.org.uk
Apple Rating 5/5Facebook 236.5KTwitter 22K Avg Length 21 min Since Mar 2019 Get Email Contact

16. Heart2Hearts

Follow Play
Website Apple Spotify
Each episode will be a discussion with a person who has a Congenital Heart Defect (CHD) and about their journey with a CHD and how they go through life.Linktree: https://linktr.ee/Heart2heartspodcastMusic used by permission by Leon Dietsch https://soundcloud.com/leon-laser-pew-pewMORE Producer/Network Stewart Laing
Email ****@heart2hearts.uk
Apple Rating 4/5Instagram 926 Avg Length 31 min Since Feb 2021 Get Email Contact