9 Best Ehlers-Danlos Syndrome Podcasts

1. Bendy Bodies with Dr. Linda Bluestein

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Whether you're bendy with all the benefits or hurting in all the wrong places, you've come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.Each week, join Dr...MORE Host Dr Linda Bluestein
Producer/Network Human Content
Email ****@gmail.com
Estimated listeners
Apple Rating 4.9/5Apple Reviews 286Facebook 14.5KTwitter 8.6KInstagram 24.9K Avg Length 73 min Format Long form Get Email Contact Get access to full database of 2.7M podcastsCreate podcast lists, export in spreadsheet or CSV file with email contacts and start your podcast outreach in minutes.Sign Up for Free with Email Continue with Google

2. Hacking Hypermobility

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Hi! We're Luna and Shelli, also known as The Two Bendy Mommas. We talk about the lived experience of those affected by the inherited connective tissue disorders, and its intersection with neurodiversity, elevating marginalized and intersectional voices for our community. Please note: Hacking Hypermobility is produced in its entirety by three disabled women in various stages of life and parenting adventures. New episodes are typically released biweekly from January through July.MORE Hosts Luna, Shelli Stanley
Producer/Network Two Bendy Mommas
Email ****@hackinghypermobility.com
Estimated listeners
Apple Rating 5/5Apple Reviews 31Twitter 7Instagram 406 Avg Length 47 min Format Long form Get Email Contact

3. EDS Unplugged

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Chronic Pain Partners/EDS Awareness has teamed up with podcast hosts Marcia and Cassandra from EDS Unplugged to launch a brand-new CPP-branded podcast dedicated to all things Ehlers-Danlos syndrome. Each episode will feature engaging conversations, expert insights, and lived experiences from across the EDS community. To make the show accessible, every episode will also include a complete transcript.MORE Email ****@gmail.com
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Apple Rating 1/5Apple Reviews 1 Avg Length 42 min Format Long form Get Email Contact

4. AWOL Zebra

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I have hEDS. If I don't talk with someone I think I'll go crazy! The answer? I share my daily life as a sort of medication. AWOL Zebra aims to educate, share and have fun. Learn how to fight this invisible illness with me, CHristie Lynn Hanchey. Restoring my body back to health. Sharing my ups downs and in-betweens. You're not alone. Join me and let's learn together. AWOL Zebra is not authorized, endorsed,or sponsored by anyone. It's a no holds barred discussion about Fascia, hEDS and plenty of other stuff. Please follow on Spotify! Thank you!MORE Producer/Network CHristie Hanchey
Email ****@gmail.com
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Apple Rating 5/5Apple Reviews 1 Avg Length 41 min Format Long form Get Email Contact

5. Zebra Talks: Living Your Best Bendy Life

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Dr Libby Hinsley and guests help people with hypermobility live their best bendy lives.
Producer/Network Dr Libby Hinsley
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Apple Rating 4.9/5Apple Reviews 1 Avg Length 41 min Format Long form Get Email Contact

6. Hidden Diagnoses Impact: Unveiling EDS, CCI, and other undiagnosed or underdiagnosed conditions

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Hidden Diagnoses Impact is a podcast that shares stories about medical conditions that often have unknown etiology or causes are idiopathic. It empowers global health advocates and undiagnosed patients by telling their stories, educating the broader public, and discussing the lack of healthcare with health professionals who are rare/undiagnosed patient advocates and allies.The podcast serves as a beacon of hope and knowledge for individuals navigating the complexities of the often misunderstood realm of hidden or 'occult' medical conditions, such as Occult Tethered Cord and Cervical Cranial ..MORE Producer/Network Amy Wang-Hiller
Email ****@gmail.com
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Apple Rating 5/5Apple Reviews 2 Avg Length 70 min Format Long form Get Email Contact

7. Empowered EDS

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Empowered EDS: Your Path to Living Well with Ehlers-Danlos Syndrome and Chronic Illness For those of you living with Ehlers-Danlos Syndrome (EDS), Hypermobility Spectrum Disorders (HSD), and other chronic health conditions or supporting someone who does, you know it's more than just a diagnosis—it's a journey. Hosted by Lauren Prince, MSW, FDN-P, and Jason Cole, DPT, founders of Connective Wellness, Empowered EDS is here to provide compassionate, expert guidance for managing EDS symptoms and the complex realities of living with a connective tissue disorder...MORE Producer/Network Lauren Prince and Jason Cole
Email ****@connectivewellness.com
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Apple Reviews 1 Avg Length 48 min Format Long form Get Email Contact

8. Sit Happens

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Sit Happens is rolling into your feed with no brakes—just like my wheelchair. I'm Jessica Dalonzo, a 24-year-old educator, disability advocate, and full-time wheelchair user with Ehlers-Danlos Syndrome (EDS). This podcast is all about the realities of disability—no sugarcoating, no pity, just real talk. From accessibility fails to career struggles, dating, and breaking stereotypes, we're diving into what it's really like navigating an able-bodied world. So sit down (or roll up) and hit subscribe—because Sit Happens, and we have a lot to talk about.MORE Email ****@gmail.com
Estimated listeners
Apple Rating 5/5 Avg Length 15 min Format Short form Get Email Contact

9. Fantastic Pains and How We Hide Them

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Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeysMORE Estimated listeners
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