12 Best Muscular Dystrophy Podcasts

1. FSHD Straight Talk with Tim Hollenback

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No one knows the experience of living with FSHD better than those who have it. FSHD Straight Talk features stories of life with this rare disease. Tune in to learn from, laugh, celebrate and sometimes grieve with fellow members of the FSHD community. Whatever your journey, we hope you'll find yourself in these episodes and know you are not alone.more Producer/Network FSHD Straight Talk
Email ****@gmail.com
Estimated Monthly Listeners 100-1k
Recent Guests Gracie Caggiano, Ryan Olson +5 more
Apple Rating 5/5Apple Reviews 3Facebook 7.5KTwitter 2.2KInstagram 4.1K Avg Length 58 min Format Long form Since Jan 2019 Get Email Contact Get access to full database of 2.7M podcastsCreate podcast lists, export in spreadsheet or CSV file with email contacts and start your podcast outreach in minutes.Sign Up for Free with Email Continue with Google

2. MyFSHD

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MyFSHD is about education and personal empowerment for the worldwide facioscapulohumeral muscular dystrophy (FSHD) community. Here we have discussions and commentary hosted by FSHD researcher Peter Jones, PhD, on many things of interest to the FSHD community. Learn about the science behind the different FSHD therapeutic approaches, FSHD pathology, family genetics and FSHD diagnostics. We will discuss upcoming clinical trials and what to look forward to. You will get to understand how you can be better prepared, become involved, and help contribute to defeating FSHD once and for all.more Producer/Network Peter L Jones, PhD
Email ****@gmail.com
Estimated Monthly Listeners 100-1k
Apple Rating 5/5Apple Reviews 6 Avg Length 89 min Format Long form Get Email Contact

3. MDA Quest Podcast

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The official podcast for the Muscular Dystrophy Association
Producer/Network Muscular Dystrophy Association
Estimated Monthly Listeners 100-1k
Recent Guests Dan Habib, Samuel Habib +17 more
Apple Rating 5/5Apple Reviews 11 Avg Length 47 min Format Long form Get Email Contact

4. Every Voice Speaks

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Every Voice Speaks unites and empowers the muscular dystrophy community by elevating patient voices and fostering collaboration across conditions like LGMD, FSHD, myotonic, Becker and Duchenne. Through personal stories, expert interviews, and accessible discussions, the show helps listeners understand drug development and learn how their input can influence trials, policies, and care. By centering lived experience, it strengthens advocacy, advances research, and supports better futures for kids and adults living with muscular dystrophy.more Email ****@malone.media
Estimated Monthly Listeners 100-1k
Apple Rating 5/5Apple Reviews 11 Avg Length 46 min Format Long form Get Email Contact

5. Destroy Duchenne Podcast

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A podcast telling the stories of those affected by a fatal muscle wasting disease, Duchenne muscular dystrophy (DMD), that robs children of their ability to walk by the age of 11, the ability to raise their arms by their teenage years, and eventually their lives in their early 20s. Hosted by 23 year old founder of the 501 (c)3 nonprofit organization Destroy Duchenne, Elijah Stacy, who also suffers from Duchenne muscular dystrophy. The goal of the Destroy Duchenne podcast is very simple, yet ambitious: interview every person that has a relationship to Duchenne.more Producer/Network Destroy Duchenne Podcast
Email ****@destroyduchenne.org
Estimated Monthly Listeners 100-1k
Apple Rating 5/5Apple Reviews 13Facebook 2.3KTwitter 515 Avg Length 45 min Format Long form Since Jul 2020 Get Email Contact

6. You, Me & Muscular Dystrophy

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Exploring muscular dystrophy one story at a time.Sharing the lives of the wonderful people that make up the muscular dystrophy community in my unique podcast series talking to people, their families and caregivers that live with the many forms of muscular dystrophy.If you or anyone you know would like to be involved in this podcast, I'd love to hear from you. My contact details will be in the notes below and I'm also on Instagram and Facebook under Leanne's Wheel Life.more Producer/Network Leannes Wheel Life
Email ****@leanneswheellife.com
Recent Guests Kelly Berger, Avery Roberts +11 more
Apple Reviews 1 Avg Length 32 min Format Medium form Get Email Contact

7. Dystrophy Diaries

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This podcast is about living life with Muscular Dystrophy. It looks at what it's like to be diagnosed at a young age, navigating relationships, employment, university alongside a disability. There will be weekly guests who will share their knowledge and experience. There will be episodes focused on Parental Nutrition, being an ambulant wheelchair user, growing up with muscular dystrophy, navigating my relationship with my disability and many other topics. This is an exciting podcast for listeners of all abilities!more Producer/Network Zoe Harrison
Recent Guests Ross Hovey, Hannah Keime +15 more
Apple Reviews 1 Avg Length 28 min Format Medium form Get Email Contact

8. PPMD's Living Duchenne

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PPMD's Living Duchenne podcast brings together community voices to talk about navigating the Duchenne experience.
Producer/Network Parent Project Muscular Dystrophy
Email ****@parentprojectmd.org
Estimated Monthly Listeners 100-1k
Apple Rating 5/5Apple Reviews 8 Avg Length 34 min Format Medium form Get Email Contact

9. The Muscular Dystrophy UK: Muscles Matter Podcast

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A podcast for people living with a muscle wasting and weakening condition, their family and carers. Themes span from health and wellbeing, the latest research, tips and advice on day to day living with a muscle wasting condition, and inspirational community stories. more Email ****@musculardystrophyuk.org
Estimated Monthly Listeners 100-1k
Recent Guests Aaron, Morvenna +20 more
Apple Reviews 5 Avg Length 32 min Format Medium form Get Email Contact

10. Beyond Labels and Limitations

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Welcome to the podcast for Beyond Labels & Limitations. John talks about living a life with Muscular DystrophyBL&L, started as an organization to raise money dedicated exclusively to Limb-Girdle Muscular Dystrophy 2A (LGMD2A) and to educate on the disease course and associated struggles of LGMD2A, as recounted through my personal experiences.more Producer/Network John Graybill
Email ****@gmail.com
Estimated Monthly Listeners 1k-10k
Apple Rating 5/5Apple Reviews 17 Avg Length 20 min Format Short form Since Jan 2020 Get Email Contact

11. Two Rare Mama Bears

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Two Rare Mama Bears, a Cure CMD Podcast - where we discuss all things Congenital Muscular Dystrophy and Rare Disease...All subtypes, ages, abilities and topics with the intent to connect the CMD community. This podcast is about bringing together affected individuals, their family, researchers, clinicians, industry, and policy-makers to have conversations with the goal of moving the needle on the mission of Cure CMD. Hosts: Megan Meyer and Matty Manley.more Hosts Megan Meyer, Matty Manley
Producer/Network Cure CMD (Matty Manley & Megan Meyer)
Estimated Monthly Listeners 1k-10k
Apple Rating 4.7/5Apple Reviews 26Facebook 3.6KTwitter 648Instagram 1.6K Avg Length 34 min Format Medium form Since Apr 2018 Get Email Contact

12. Go Orange for Muscular Dystrophy Tasmania Podcast

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Hosted by former ABC broadcaster and the charity's patron, the Go Orange for Muscular Dystrophy Tasmania Podcast promotes the good work of Muscular Dystrophy Tasmania and the inspiring people determined to help improve the lives of those with neuromuscular disorders from research, therapies, volunteering, fundraising and more.more Recent Guests Warren Leahy, Dr Chantal Coles
Avg Length 29 min Format Medium form Get Email Contact