20 Best Congenital Disorders Podcasts

1. If We Knew Then

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We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting.MORE Hosts Stephen Saux, Lori Saux
Producer/Network Stephen and Lori Saux
Email ****@gmail.com
Apple Rating 5/5Facebook 5KTwitter 1.4K Avg Length 53 min Since Apr 2020 Get Email Contact Get Influential Podcasters ContactsGet access to 100k active Podcasters, Influencers in 1500 niche categories.Get targeted media contact list in your niche at your fingertips so you can focus on running your campaign.Email us the categories of Podcasters you want to reach out for your marketing campaign at anuj@feedspot.com Copy email. We'll share active Podcasters list with verified email contacts in an Excel or CSV format.Email us

2. Portland Roots Media

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I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called USP7. She's different. And now, so is everything else. #USP7 #autism
Host Bo Bigelow
Producer/Network Bo Bigelow
Email ****@gmail.com
Apple Rating 5/5Facebook 221Twitter 252 Since Jan 2015 Get Email Contact

3. Living With Cystic Fibrosis

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Living With Cystic Fibrosis podcast by Bonnell Foundation with the challenges and triumphs along the way.
Host Laura Bonnell
Producer/Network Laura Bonnell
Email ****@cbsradio.com
Apple Rating 4.7/5Facebook 455Twitter 1.7K Avg Length 40 min Since Feb 2019 Get Email Contact

4. The LowDOWN Podcast

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The LowDOWN: A Down Syndrome Podcast brings a professional perspective on issues facing individuals with Down syndrome and their loved ones. Hosts Marla Folden and Hina Mahmood of the Down Syndrome Resource Foundation welcome North America's leading Down syndrome experts, parents and self-advocates to cover topics from across the lifespan including health, physical and intellectual development, advocacy, employment and much more.MORE Hosts Hina Mahmood, Marla Folden
Producer/Network Down Syndrome Resource Foundation
Email ****@dsrf.org
Apple Rating 5/5Facebook 13.9KTwitter 3.4KInstagram 2.5K Avg Length 47 min Since Apr 2020 Get Email Contact

5. Down Syndrome Center of Western Pennsylvania Podcast

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This is the podcast series for the Down Syndrome Center of Western Pennsylvania at Children's Hospital of Pittsburgh of UPMC.
Host Kishore Vellody, MD
Producer/Network Kishore Vellody, MD
Email ****@chp.edu
Apple Rating 4.8/5Facebook 90.7KTwitter 32.8KInstagram 32.2K Avg Length 22 min Since Feb 2013 Get Email Contact

6. Heart to Heart with Anna

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'Heart to Heart with Anna' is the longest-running podcast devoted to the congenital heart defect (CHD) community. Our shows feature Survivors, family members, medical professionals and others in the CHD community who wish to share their stories, expertise, and advice. This show is devoted to empowering, educating and enriching the lives of members of the CHD community.MORE Host Anna Jaworski
Producer/Network HUG Podcast Network
Email ****@hearttoheartwithanna.com
Apple Rating 4.2/5Facebook 2.3KTwitter 846 Avg Length 42 min Since Sep 2014 Get Email Contact

7. TALK Down Syndrome

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TALK Down Syndrome is a podcast created to show the world how Down Syndrome is truly amazing. Our goal is to inspire others through stories and interviews about Down syndrome and to advocate the importance of fair laws for our loved ones with Down syndrome!MORE Host Chantele Holm
Producer/Network Chantele
Email ****@gmail.com
Apple Rating 5/5 Avg Length 55 min Since May 2020 Get Email Contact

8. Talk Fragile X

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Talk Fragile X Podcast consists of a group of Mom's of FX Children, Self-Advocates, and Full-Mutation carriers from the Northwest Region! We're all on a mission to use this podcast platform to reach as many FX families as possible, create more awareness of FX, and provide helpful resources and support. Even if you don't know what Fragile X Syndrome is, this Podcast is still for you! We want everyone to know what Fragile X is and understand its genetic prevalence in individuals lives.MORE Producer/Network Talk Fragile X
Email ****@fragilex.org
Apple Rating 5/5Facebook 17KTwitter 2.7KInstagram 3.2K Avg Length 30 min Since May 2020 Get Email Contact

9. The CFRI CF Community Voices Podcast

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CFRI's CF Community Voices is a video podcast series created by and for the cystic fibrosis community.
Email ****@CFRI.org
Facebook 11.4KTwitter 2.1K Avg Length 35 min Since May 2018 Get Email Contact

10. Down Right Designed

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Podcast highlighting the life of Anna Sasser, a young adult with Down syndrome. She participates in discussions about her adventures, challenges, hopes, dreams, and life in general.
Host Anna Sasser
Producer/Network Anna Sasser (and her Dad)
Email ****@outlook.com
Apple Rating 5/5Facebook 2.8K Avg Length 31 min Since Feb 2020 Get Email Contact

11. The Rare Life

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Curated by a fellow special needs mom in the trenches, The Rare Life features Madeline's own experiences and takeaways as she parents her son Kimball who was born with several major birth defects due to his extremely rare genetic disorder, as well as conversations with other parents who share their own advice and stories of loving a child with medical complexities.MORE Host Madeline Cheney
Producer/Network Madeline Cheney
Email ****@mightiestmamas.org
Apple Rating 5/5Facebook 1.8KInstagram 20.9K Avg Length 45 min Get Email Contact

12. The Lucky Few

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Hey friends! Welcome to the Lucky Few Podcast where we are shifting the narrative by shouting the worth of people with Down syndrome. With your hosts, Heather Avis, Micha Boyett, and Mercedes Lara. Support this podcast: https://anchor.fm/theluckyfewpod/supportMORE Hosts Heather Avis, Micha Boyett, Mercedes Lara
Producer/Network The Lucky Few Podcast
Email ****@theluckyfew.com
Apple Rating 4.9/5 Avg Length 48 min Get Email Contact

13. Disorderly Blondes Autism

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South Florida moms, Brenda and Kristi, candidly discuss MOTHERHOOD and AUTISM while balancing heels, cocktails, and meltdowns. They share the challenges and triumphs that define the parenting journey of their own special needs sons. Together, they provide community support and a lifeline to parents of newly diagnosed children, teens, and adults.MORE Hosts Brenda Popritkin, Kristi Vannatta
Producer/Network Disorderly Blondes
Email ****@gmail.com
Apple Rating 4.9/5Facebook 847Twitter 174 Avg Length 46 min Get Email Contact

14. Good Things in Life podcast

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Join Genia in discussion with other parents, thought leaders, and visionaries about helping young children with intellectual disabilities get the good things in life. Join the conversation. Good things in life are for families with a vision about what is possible and how to achieve it. Whether your child has cerebral palsy, down syndrome, angelman syndrome, autism, or a mild learning disability, the Good Things in Life podcast can help you figure out how to take action to protect your child from harm and work towards a good life.MORE Host Genia Stephen
Producer/Network Genia Stephen
Email ****@goodthingsinlife.org
Apple Rating 4.8/5Facebook 1.9KTwitter 195 Avg Length 58 min Since Oct 2018 Get Email Contact

15. The Shifting Perspectives

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The Shifting Perspectives Podcast brought to you by the Down's Syndrome Association and hosted by Richard Bailey, photographer, and curator of the Shifting Perspective project. It tells the stories of people who have Down's syndrome as well as of their families and carers, raising a smile, providing insights and challenging commonly held attitudes and prejudices.MORE Producer/Network The Down's Syndrome Association
Email ****@downs-syndrome.org.uk
Apple Rating 5/5Facebook 236.5KTwitter 22K Avg Length 21 min Since Mar 2019 Get Email Contact

16. Heart2Hearts

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Each episode will be a discussion with a person who has a Congenital Heart Defect (CHD) and about their journey with a CHD and how they have coped with the Covid19 pandemic.Instagram: heart2heartspodcastMusic used by permission by Leon Dietsch https://soundcloud.com/leon-laser-pew-pewMORE Producer/Network Stewart Laing
Email ****@heart2hearts.uk
Apple Rating 4/5Instagram 926 Avg Length 31 min Since Feb 2021 Get Email Contact